Leishmaniasis Advocacy Network - #Biteback

What is Leishmaniasis?

Leishmaniasis is a devastating disease caused by parasites of the Leishmania species, transmitted to humans through the bites of infected sandflies. It manifests in three main forms: cutaneous leishmaniasis, which causes painful skin lesions and scarring; visceral leishmaniasis (also known as kala-azar), a life-threatening condition that affects internal organs; and mucocutaneous leishmaniasis, which can lead to severe disfigurement by attacking mucosal tissues. Affecting millions of people across more than 90 countries, leishmaniasis disproportionately impacts the world’s poorest and most vulnerable populations, particularly in regions with limited healthcare access.

Why is Leishmaniasis Neglected?

Despite its significant burden, leishmaniasis is classified as a Neglected Tropical Disease (NTD) by the World Health Organization (WHO). Several factors contribute to this neglect:

• Geographic and economic marginalization: The disease primarily affects low-income communities in remote areas, limiting its visibility on the global health agenda.
• Insufficient funding: Research and development for leishmaniasis treatment, prevention, and diagnostics receive minimal investment compared to other diseases.
• Stigma and lack of awareness: Those living with leishmaniasis often face social stigma, further compounding their challenges and diminishing advocacy efforts.
• Complex treatment barriers: Existing treatments are expensive, toxic, and logistically difficult to administer, leaving many without adequate care.

What Needs to Be Done?

Addressing leishmaniasis requires a holistic, multi-sectoral approach:

• Awareness and education: Increasing global understanding of leishmaniasis to reduce stigma and galvanize support for affected communities.
• Improved access to care: Advocating for affordable, effective, and accessible treatments for all patients.
• Research and innovation: Driving investment in the development of new diagnostics, vaccines, and therapies to combat the disease.
• Community empowerment: Collaborating with affected populations to develop culturally relevant solutions and strengthen local health systems.
• Policy advocacy: Engaging with governments, donors, and organizations to ensure leishmaniasis is prioritized in public health strategies.

Why We Are Doing This

At the Leishmaniasis Advocacy Network (LAN), we believe that no one should suffer in silence from a preventable and treatable disease. Founded by a survivor of leishmaniasis, our mission is to amplify the voices of those impacted, raise awareness about the disease’s humanitarian toll, and advocate for meaningful change. By fostering partnerships, building global momentum, and empowering communities, we aim to bridge the gap between neglect and action. Together, we can shine a light on leishmaniasis and work towards a world where no one is left behind in the fight against this devastating disease.